Who is receiving survivorship care plans? Findings from the 2012 Livestrong survey.

Patient and Survivor Care
Session Type and Session Title: 
General Poster Session, Patient and Survivor Care
Abstract Number: 
J Clin Oncol 31, 2013 (suppl; abstr 9608)
Ruth Rechis, Carla Bann, Stephanie Nutt, Linda Squiers, Naveen Rao; LIVESTRONG Foundation, Austin, TX; RTI International, Research Triangle Park, NC

Abstracts that were granted an exception in accordance with ASCO's Conflict of Interest Policy are designated with a caret symbol (^).

Abstract Disclosures


Background: There are more than 14 million cancer survivors in the US – a number that is on the rise. Care coordination resources will be essential to provide support to this growing population. Key stakeholders, including the Commission on Cancer (CoC) and the Institute of Medicine, have proposed survivorship care plans (SCPs) as a way to extend support. However, limited research has been conducted to date on SCPs. Methods: In 2012, the LIVESTRONG Foundation (LIVESTRONG) administered a survey to understand the role of a treatment summary (TS) and SCPs and how they fit into survivors’ care. Logistic regression models were conducted to identify factors associated with receiving SCPs or TS. Results: 5,303 survivors responded to these questions (Table). While 92% of these respondents received information about where to return to for cancer check-ups, only 51% reported receiving a TS and 17% reported receiving a SCP. Survivors who were more likely to receive SCPs if they had a navigator (p<.001) and if they were male, Black, had finished treatment within the past year, or received care at a university-based medical center or community cancer center (p < 0.05). Also, those receiving a SCP were significantly more likely to have had a detailed discussion with a provider regarding long-term side effects, emotional needs, and lifestyle recommendations. Specifically, 60% of those with a SCP discussed long-term effects compared to 39% who did not. Conclusions: Results here indicate that few survivors receive SCPs but survivors reported benefits from receiving them. Currently many workflow barriers impede delivering SCPs, and LIVESTRONG is working with key stakeholders including the CoC to automate the LIVESTRONG Care Plan powered by Penn Medicine’s OncoLink through a registry and EMR system to understand how to address this issue.

Percentage of respondents receiving SCPs and TS (N=5,303).
Characteristics SCPs % TSs %
Overall 17 51
Male 20* 60*
Female 15 46
White, non-Hispanic 16* 50*
Black, non-Hispanic 31 68
Hispanic 19 54
Other/multiple race 20 61
Survivorship stage
Living with cancer as a chronic disease 14* 43*
Finished tx < 1 year 21 57
Finished tx 1-5 years 17 54
Finished tx ≥ 5 years 15 48